Friday, January 20, 2017

News and notes from AMD, 1/20/17

Fact Sheet: ACA and disability
http://www.advocacymonitor.com/fact-sheet-the-affordable-care-act-and-the-disability-community/

Anabaptist Disabilities Network on health care
http://us5.campaign-archive2.com/?u=fc4d1d6b69c4ca3b7c360527d&id=c9e7d4a1e2&e=3be94e61ff

UMCD offers Sarah Wilke our congratulations and our thanks. Sarah was responsible for ensuring there was an ASL presence at the World Federation  of Methodists in Houston. This captured the attention of many people, and led to discussions about ASL expansion at General Conference.
http://www.scarrittbennett.org/wp-content/uploads/2015/01/Wilke-news-release-SBC-SEW.pdf

The Feast at Highland Park UMC
http://www.dallasnews.com/news/highland-park/2017/01/12/highland-park-united-methodist-church-focuses-special-members-weekly-feast-service

Language and portrayals
https://blog.samhsa.gov/2017/01/09/the-power-of-language-and-portrayals/#.WIC-tvkrLIU
     
Click here for a list of events of interest to people in disability ministry.
UMAMD logo with the UM Cross and Flame and several disability symbols
This newsletter is generally issued weekly by the
United Methodist Association of Ministers with Disabilities,
a caucus of the United Methodist Church.

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Friday, January 13, 2017

News and notes from AMD, 1/13/17

 January newsletter from DHM
http://www.umcdhm.org/news/index.html

Curb cuts and public benefit
https://ssir.org/articles/entry/the_curb_cut_effect

Thoughts about charity: are "saviors" inherently discriminatory?
http://www.truth-out.org/opinion/item/38989-saviors-believe-that-they-are-better-than-the-people-they-are-saving

Advocacy: the importance of Medicaid
https://withoutacrystalball.com/2017/01/06/the-real-fear-of-losing-medicaid-one-mothers-perspective/

UM Disability blog: Heath care
http://umdisability.blogspot.com/2017/01/health-care-and-invitation-beth-dehoff.html

CripPastor blog
https://crippastor.wordpress.com/2017/01/12/health-and-the-real-me/

Advocacy: Health care alerts from The Arc
http://us2.campaign-archive1.com/?u=b516ab2850dff6a42eff1a9e7&id=407f6e92aa&e=61b0cca606

Notice to AMD members: 
The members of the UMAMD committee on nominations wishes to extend to The Rev. Dr. Robert Walker, our sincere gratitude for the hours of skillful time and dedication he gave to the Association of Ministers With Disabilities, both serving as editor of the book Speaking Out, and serving as chair of the association's social action committee. As such, Bob spent many hours helping the committee to revise and distribute petitions for the 2016 general conference. We are pleased to let you know that, upon Robert Walker's resignation as chair of the social action committee, due to age and personal concerns, The Rev. Evy McDonald, a retired elder, has agreed to serve as the chair of the social action committee.
If you have any objection or prefer to submit another name for consideration, please contact one or both of the Association co-chairs, Rev. Russel Ewell or Rev. Janine Delaunay. If no comments are received by January 25, 2017, Evy shall be elected by acclamation.
The nominating committee is considering that all the officers who were elected at our last meeting in Dallas in 2015 are willing to remain in the offices to which they were elected. If not, PLEASE contact, The Rev. Nancy Webb, chair of the nominating committee, at 1-410-444-7222 or njwebb@verizon.net
Annual dues of $25 are due to Greg Edwards, treasurer, United Methodist Association of Ministers with Disabilities,
1955 Chevy Chase Lane, Beaumont TX 77706, during the month of January 2017.


Click here for a list of events of interest to people in disability ministry.
UMAMD logo with the UM Cross and Flame and several disability symbols
This newsletter is generally issued weekly by the
United Methodist Association of Ministers with Disabilities,
a caucus of the United Methodist Church.

Click here to join this e-mail list.
Visit us on the web or Facebook

Thursday, January 12, 2017

Health Care and an Invitation -- Beth DeHoff

(As a reminder, the UMC identifies health care as a basic human right and advocates for universal coverage.)

Health care and an invitation to Rep. Todd Rokita

I recently posted on Facebook about my heartfelt letter to Rep. Todd Rokita about the importance of the ACA and Medicaid to my child and so many others, and quoted his canned response about his more than 60 attempts to get rid of "Obamacare" and his opinions against the ACA. I sent this response to him today:

Dear Rep. Rokita,

It was disheartening to me to receive a form letter boasting about your more than 60 efforts to repeal, delay or defund the Affordable Care Act after I wrote you a heartfelt letter about the damage this action will do to my vulnerable son with disabilities and so many families who I serve in the my work with children with special health care needs and their families. I feel as my representative, you should provide a personalized response addressing my fears and concerns. I also feel that since you also have a child with a disability, we might share common experiences and can learn from one another. A canned letter response thwarts any opportunity for relationship or learning.

I respect your right to your opinions, but I question your facts. I have a master's degree in public health, am a published author on Maternal Child Health, and am a certified Indiana health care navigator. The ACA reflects efforts previously made by Republicans, and it honors free market options as well as providing government options. Last year, the cost of premiums went up, as they have every year for the past five decades, but they went up less than any year in the past 20. The tax increase only affects people making more than $200,000 a year or families making more than $250,000 a year, and last I checked, that's not the middle class. Tax increases also vary widely from state to state, with the highest increases in states who did not choose to expand Medicaid, while 10 states that expanded Medicaid saw increases of 7 percent or less. As many as 2.5 million Americans would be eligible for premium tax credits in a marketplace plan, meaning these folks, based on income, pay a premium far more affordable than most of us pay through our employers.

The ACA made my son insurable with his pre-existing conditions. It made our lifetime maximum go away -- before the ACA, Kyle would have lost coverage by his teens and been completely uninsurable in any other plan. In addition, Medicaid funding make it possible for him to have a waiver and for us, his parents, to be able to work, pay taxes, and contribute to his future and our community. Before Medicaid, we averaged $13,000 a year in out-of-pocket medical expenses after our employer insurance, which paid at levels that, without the ACA, would have reached a lifetime maximum and left Kyle with no insurance by now. Without the ACA, any other insurance plan would be out of the question due to his pre-existing conditions. Without Medicaid dollars for a waiver, I would be unemployed and then eligible for all sorts of public assistance. I prefer to have these basic safeguards available at a modest cost for my vulnerable son, so that his dad and I can be employed and over income for any other assistance.

I respectfully request a meeting with you and your staff member who covers health issues. I will meet with you and bring 2-3 other parents of children with special health care needs. You can learn a little bit about our lives, we can learn about you and your son, and we can help each other learn about our various perspectives on these issues and find where we can reach middle ground. We're all Hoosiers. We're all Americans. Please don't make this about political ideologies. It's about people...families...and for me, a wonderful boy named Kyle.

Thank you,

Beth A. DeHoff, MPH

Beth DeHoff, MPH, works as a family support coordinator in Indianapolis. She is a member of First United Methodist Church in Mooresvile, IN, and co-leader of the Indiana Conference Disability Ministries committee. She has been a member of the UM Disability Ministries Committee and Speedway UMC Special Needs Ministry. Her son Kyle has Down syndrome, autism and is a leukemia survivor. This blog entry is reprinted from http://brokenandchosen.blogspot.com/2017/01/health-care-and-invitation-to-rep-too.html with permission.

Friday, January 6, 2017

News and notes from AMD, 1/6/17

Mental health: post-bullying syndrome
http://www.slate.com/articles/health_and_science/medical_examiner/2016/06/the_lasting_effects_of_childhood_bullying_are_surprisingly_not_all_detrimental.html

Music therapy
http://www.nami.org/Blogs/NAMI-Blog/December-2016/The-Impact-of-Music-Therapy-on-Mental-Health

Nearly all students find closed captioning useful
http://www.3playmedia.com/2016/12/20/more-research-concludes-nearly-all-students-find-closed-captions-helpful-for-learning/

Accessible art (and buildings)
http://mashable.com/2016/12/29/art-accessibility-blind-low-vision/#x9nawsTkAmqU

Attack a reminder of violence faced by disabled
https://www.facebook.com/NCDgov/posts/1331282053578066

Advocacy: The Arc Action page for health care
http://cqrcengage.com/thearc/app/write-a-letter?3&engagementId=268013

Notice to AMD members:

The members of the UMAMD committee on nominations wishes to extend to The Rev. Dr. Robert Walker, our sincere gratitude for the hours of skillful time and dedication he gave to the Association of Ministers With Disabilities, both serving as editor of the book Speaking Out, and serving as chair of the association's social action committee. As such, Bob spent many hours helping the committee to revise and distribute petitions for the 2016 general conference.

We are pleased to let you know that, upon Robert Walker's resignation as chair of the social action committee, due to age and personal concerns, The Rev. Evy McDonald, a retired elder, has agreed to serve as the chair of the social action committee.

If you have any objection or prefer to submit another name for consideration, please contact one or both of the Association co-chairs, Rev. Russel Ewell or Rev. Janine Delaunay. If no comments are received by January 25, 2017, Evy shall be elected by acclamation.

The nominating committee is considering that all the officers who were elected at our last meeting in Dallas in 2015 are willing to remain in the offices to which they were elected. If not, PLEASE contact, The Rev. Nancy Webb, chair of the nominating committee, at 1-410-444-7222 or njwebb@verizon.net.

Annual dues of $25 are due to Greg Edwards, treasurer, United Methodist Association of Ministers with Disabilities,
1955 Chevy Chase Lane, Beaumont TX 77706, during the month of January 2017.

--

Click here for a list of events of interest to people in disability ministry.
UMAMD logo with the UM Cross and Flame and several disability symbols
This newsletter is generally issued weekly by the
United Methodist Association of Ministers with Disabilities,
a caucus of the United Methodist Church.

Click here to join this e-mail list.
Visit us on the web or Facebook

Friday, December 30, 2016

News and notes from AMD, 12/30/16

See you next year!

Story from L'Arche newsletter
https://www.larcheusa.org/2016/12/where-is-your-bed-pillow/

Flying with a wheelchair
http://consumersense.org/wheelchair-users-hate-fly-more-than-you-do-heres-why/

UCLA study on people with disabilities in the world
http://www.scpr.org/news/2016/12/18/67332/ucla-study-looks-at-how-the-world-treats-people-wi/

“Special needs” is an ineffective euphemism, Cognitive Research 1:29
http://www.readcube.com/articles/10.1186/s41235-016-0025-4

UM Disability blog: hope
http://umdisability.blogspot.com/2016/12/hope-diane-mettam.html


--

Click here for a list of events of interest to people in disability ministry.
UMAMD logo with the UM Cross and Flame and several disability symbols
This newsletter is generally issued weekly by the
United Methodist Association of Ministers with Disabilities,
a caucus of the United Methodist Church.

Click here to join this e-mail list.
Visit us on the web or Facebook

Monday, December 26, 2016

Hope -- Diane Mettam

Dear Friends,

I am so sorry you haven’t heard from me in such a long time.  I have been in the middle of a flare-up for a couple of months, and it is painful and draining.  I have tried to sit and write, and my writing goes nowhere.  With all that has been going on in this world, you would think that certainly God would give me something to say, but nothing has come through my mind or my fingers.  In this season of anticipation, I am honestly waiting. 

I am not waiting to feel better; I know it will come in its own good time.  I am waiting for the pain to pass.  It will happen, but not on my schedule.  It is difficult to endure at times, but I am comforted to know that I am not the only one who has gone through struggles with pain.  Paul wrote of a thorn in his flesh  “to keep me from being too elated.”  2 Corinthians 12:7  The psalmists wrote often of pain.  “But I am lowly and in pain; let your salvation, O God, protect me.”  Psalm 69:29  “For I am ready to fall, and my pain is ever with me.”  Psalm 38:17

The problem with pain is that it distracts us from so many things, including God.  It weakens us physically as well as mentally, emotionally, and spiritually.  One drags through the day, sometimes with grand ambitions of what will be accomplished, sometimes with the hope of just getting the bare minimum accomplished - getting bathed and dressed and the animals fed.  I am so grateful that I have a loving, understanding husband, although I often fear that he must be so tired of coming home to yet another day of nothing accomplished.  I am also grateful that it is Christmas break, and I have secured the services of a high school friend, who can look at a room and see what needs to be done without my telling her.  Thanks to her my family’s Christmas presents were wrapped and boxed and mailed last Monday, and my office filing was taken care of.  While I was trying to figure out what to do next, she cleaned out the magazines on my end table.  I am blessed. 

I used to be able to do two things a day; on an exceptional day I could handle three.  Now I’m lucky if I can do one, and I am grateful for those times.  Volunteering with the children at school gives me a sense of purpose and worth.  Attending Bible Study keeps me connected to the Lord and other Christians.   Going to the gym with my husband, if only to use the hydro-massage, helps me get out of my house.  Participating in the Christmas Pageant (although I had to hide the script in my Bible and read all of my lines - my short-term memory is shot) gave me a chance to forge connections with our youth and celebrate Christmas in a new way. 

Today is Christmas.  I still haven’t sent out the Christmas cards.  They may be Epiphany cards this year.  But we celebrated Christmas Eve and Christmas Day in church.  We brought requested food to the St. Vincent de Paul kitchen.  (Did you know there was a whipped cream shortage?  Apparently a nitrous oxide factory exploded and since it is a propellant and a preservative in canned whipped cream, it has caused a nationwide shortage, but we were able to find plenty at our Costco.)  We’ve renewed our homeless bag ministry since our city closed the campground where those without housing were allowed to sleep overnight.  There are lots of cold people on the street now.  The local market cooked our meal, and it is excellent.  And there is plenty for anyone who might stop by. 

On this night when we remember and give thanks for the gift of the Christ Child, I wish you all  a blessed holy day, full of joy and gratitude.  I don’t know when I’ll be able to write to you again, but please know you are in my thoughts and prayers every day. 


Dear Lord, I thank you first for the gift of your Son.  By coming to earth as one of us you demonstrated the depth of your love for us.  Thank you for the gift of Scripture, which can guide us and inspire us, comfort us and instruct us.  Thank you for the saints who have gone before us, and for those who live among us now.  Their love and their lives encourage us when we weary or our path is unclear.  And thank you for the promise of the resurrection, of knowing that we will always be with you.  Because of Jesus there is hope, and the world has never been the same.  Amen.

Friday, December 16, 2016